I’m Officially a Parody

"We carry sizes 1, 3, and 5. You could try Sears." Customer looks shocked and appalled.
Fun Fact: I used to do all my Back to School clothes shopping at Sears.

While I couldn’t sleep for two nights, my brain kept thinking of a post to compose but didn’t have the energy to hold my phone and type. I’ve been debating giving a medical update. Part of me thinks, who gives a shit? Another part of me thinks, people judge others who share “too much.” Also, I hate Facebook. I do most of my posting at Instagram and Bsky now and frankly, I’m very tired by the “end of the day” (1pm) to do more than post a daily report about cats.

The night before I finished this lengthy personal story, I got a letter from the state saying they did not accept my documentation of my new yoga job wages so they will cancel my insurance in 3 weeks if I don’t fix it. Try getting a hold of them. They say to contact your local county office first. They have never answered their phone. EVER.

On with the story

In one month, I had 3 cold sores (yay Herpes!) on my lip. But wait – there’s more! Then I got 3 on my lip that arrived the same night! They brought along some acne to try and give the old fart rosacea neighbors something to really complain about. I guess I’m stressed.

Amber's left hand covered in scabby hives.
Hurray! More Hives!

 

Also, my parents have been going through their shit too. Even though the 2nd cancer (bladder) is gone, Dad still has to go for treatments and scopes all the time. It never stops. Every week is another appointment. The side effects are a constant source of complaints. He’s pushing himself and doing the best he can.

black cat Gus standing on a chopped down tree next to The Grumpy Old Man who is actually smiling while petting his little pal.
Gus and Grandpa

 

Mom tripped over Gus’ food mat in the kitchen which launched her into a metal drawer handle. She needed stitches for the first time in her 78 years. This comes after she tripped over the fake Christmas tree box and broke her arm giving her the first broken bone of her life. She is quite displeased with these kinds of firsts.

Now for ME, ME, ME

A while ago, I was diagnosed with F3 bridging liver fibrosis probably from compensated advanced chronic liver disease (cACLD). That means 60% of my liver is fucked.

illustrated liver clipart from Canva

Since I’m not an alcoholic nor have I ever been (I was a heavy weekend drinker for a few years), guess what the specialists are blaming?

There’s no prize money. Drumroll please……..

Little Girl from Real Housewives of NJ: "You're So Fat!"

I’M A HUGE FATASS!

DING DING DING If you guessed correctly go to the next round. I think of a lot of things as karma. I wished for huge breasts in puberty and I got ’em! Whoa, Nelly! Did I ever get ’em! So sorry for that wish. Although having a huge top was the only thing to give me a “figure” because the rest of me is shaped like a sausage.

Before I go any further, let me say, I’m comfortable with myself. I don’t feel like I need to lose weight. I don’t feel “fat” but I call myself that because it’s how the world sees me now. The irony is, I was called fat publicly in comments often when I was thin and modeling all the time because if you’re showing that you don’t hate yourself, other people really despise you.

As you know, the world is not built for fat people. We’re still a safe demographic to be a punchline. Airplane seats are a joke. Quite often I don’t have enough room in a public bathroom stall to maneuver in order to hang my bag, deal with the paper cover, add another cover after the first one gets sucked down, try to turn around while my elbows clunk into the walls, get my pants down, and then do my business. Then there’s being the ugly friend which is different than being the fat friend because you can be heavy and gorgeous. I might love the looks of fashion, makeup, and hair, but my style is flannel shirts with leggings (or cargo pants for outside). Usually, I’m in pajamas if I’m not teaching a class.

Like everyone else (at least cis-women), I bought every kind of diet pill and SlimFast. I will say, I never joined WW or JennyC. I never had that kind of money to throw away. That was for richer fat women. Frankly, they’re scams that make money expecting people to fail. #Dietland #JenniferLives

There’s never been a solid explanation for my chronic fatigue (I don’t think I have ME) but I did have Epstein-Barr. The CONSTANT medical orders to exercise bring me to rage and tears – think Michael Douglas in Fallen or for the younger kids, Scarlet Witch in Avengers and WandaVision. Fortunately my GP gets me and doesn’t do this. Did I used to practice pilates and cardio 5x a week? Yes, I did, because I was in a mania phase for about 3 years (I also didn’t eat much because I was afraid to after my gall bladder was removed) which you may know has a reversal and declines into severe depression hitting rock bottom. Everyone cycles differently. It could be hour by hour, day by day, or years to years.

Amber in costume between Darth Vader and Boba Fett
2007

 

So—medication and yoga now. Stable but very much a sloth. I am not eating that many eggs, Dr. Hot Indian Doctor! And I ain’t going to do cardio. Louder for the people at the back of the fat clinic: I AIN’T GOING TO DO CARDIO. Because I will die. I went on an “easy” hike and was ready to be med-evac’d after a mile. I went to CrimeCon and missed a ton of events because I was in my room from pain and exhaustion while hating myself for missing the chance to see expert speakers.

Now it’s 2024. I’ve been seeing liver specialists who think losing weight is the only option to maybe reverse liver disease. That’s done with either digestive surgery or medication. I refused the surgery. I don’t qualify for Ozempic because insurance companies know it’s in high demand for weight loss thanks to Hollywood celebs using it when they don’t have diabetes II. I was allowed to try a diabetes pill that has a laughably low rate for weight loss. It didn’t work and made me more tired plus dizzy. I saw the specialist and asked to switched.

Now I’m on a good old fashioned diet pill and one for migraines. There are seven prescription bottles on my nightstand now plus vitamins and eczema cream. With this diet pill, I expected it to be like speed. I expected to be like a rat on cocaine! I felt good for a day and as expected, couldn’t sleep that night, but I never can. I can be at 1 hit point with total exhaustion and I’ll nod off for maybe 15-20 minutes. So, I take a pill to knock my ass out or my anxiety brain would keep me awake and not in a productive way like geniuses who don’t sleep and solve formulae or write complete books in 24 hours. No, it’s in a useless, confused way where reality is a blur.

 

The reality of liver disease is that I can barely function. If my 2 hours of slow-moving energy is going to be walking Gus, or yoga, or writing—that’s all I got.

That’s why I haven’t been podcasting or staying in contact. It’s why I have 2 manuscripts that have taken years to make any progress on.

Like I said, if you’re a Facebook user primarily, I’m more than likely missing your updates. IG shows posts in random order but I truly use it for therapy to look at cats and one hilarious lizard (@whosagoodlizard). I check FB DMs once a week. If for some reason, you can’t find my email, it’s amberlovescomics at gmail.

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4 Comments on An Over-Share: very personal medical stuff HURRAY!

  1. Sending you so much love. That is a lot to deal with and I’m here if there’s anything I can do to help. ♥️

  2. First? I love you. You’re amazing and more than a liver disorder, virus, or doctor’s comment.

    Second…what testing have they done outside of basic liver enzyme levels for this? Have they done any imaging? I strongly suspect that you have autoimmune issues, but also, did anyone tell you that EBV actually CAN cause liver disease?

    Hit me up if you want to talk more about this.

    M

    • Weird, no of course no one told me EBV can cause this. It is a warning on like every single medication. But I’ve had other tests like biopsies which was a fun team and they let me watch. Loved that team compared to this Fat Farm doctor.

      My thyroid levels have somehow always been fine. I don’t remember any other tests for autoimmune. Oddly, my mom just got pinged for a thyroid issue and she was panicked because it’s always been fine! She went to have it biopsied and it is fine.

      Yeah, any articles or whatever you can email me links and books. I’m so exhausted and still trying to teach 3-5 classes a week. Sooooooooo…. Love you back.

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